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How Do I Get Off This Ride?! Riding the Emotional Rollercoaster of Your Child’s Diagnosis

Up and down, around and around, out of control and going wayyy too fast. That’s how some parents describe how they felt when swirling around in the medical maelstrom that follows a child’s diagnosis of cystic fibrosis or another serious medical issue. That’s how I felt when my son was born via caesarian section and whisked away into the Neonatal Intensive Care Unit (NICU) after three seconds of “bonding.” I saw him just long enough to know that things weren’t looking good. He had meconium … [Read More...]

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ElizabethTORCH2SMALL

Is Your Teen Giving Up? How to Empower Hope in Teens- Part 2 of 4

In part 1 of 4, we talked about getting your teen evaluted for depression and being purposeful about finding joy, meaning and connection. This week, we add two more tips for empowering your teen to be hopeful: 4. Does your teen have a vision for his or her life? Sometimes when kids have a serious […]

teen and dad

Is Your Teen Giving Up? How to Empower Hope in Teens- Part 1 of 4

I talked with a dad who is concerned about his fifteen-year-old daughter. He is afraid that she is giving up. She has cystic fibrosis (CF) and it’s taking a toll on her mentally and emotionally. She’s been hospitalized a lot and is not doing well at school. He feels like she’s just waiting to die […]

Jake and MarshawnSmall

The Seattle Seahawks are Great at More Than Just Football!

With the Seattle Seahawks going to Super Bowl XLVIII, it’s a good time to share our personal experiences with the Hawks.   My son has cystic fibrosis (CF) and wanted more than anything to meet the Seattle Seahawks and especially his hero Marshawn Lynch. So in October of 2011, Kid’s Wish Network made his dreams come true. They […]

7720965_s

How Do I Get Off This Ride?! Riding the Emotional Rollercoaster of Your Child’s Diagnosis

Up and down, around and around, out of control and going wayyy too fast. That’s how some parents describe how they felt when swirling around in the medical maelstrom that follows a child’s diagnosis of cystic fibrosis or another serious medical issue. That’s how I felt when my son was born via caesarian section and […]

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Instead of Resolutions, Take Baby Steps

Happy New Year! As you turn your gaze from the past to the future, think of today as a clean slate. Let go of the mistakes, embrace the successes and move forward with baby steps.   As parents of children with special healthcare needs, our plates are a bit more full than most. We can easily […]

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Does your child with health issues have behavioral issues?

A CF facebook page had a posting that I thought you all might appreciate here: Parents of children with cystic fibrosis… do any of your children have behavioral issues? As a parenting educator and mom of two with CF, I have been studying this issue (and living with it) for about 13 years now (since […]

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Avoiding the Bumps in the Road: The Essentials for Raising a Child with Special Healthcare Needs

Parenting isn’t for whimps! Raising kids throughout their developmental stages is tricky enough; parents of kids with medical issues have to face additional challenges along the way.   When we know where the bumps and potholes are, it becomes a lot easier to avoid them! So let’s take a look at some of the challenges […]

School Teacher

Tips for Good Communication with Teachers and School Staff about Your Child’s Special Medical Needs

 Communicating well is a critical skill that many of us simply weren’t born with. The good news is that communication skills can be easily learned. When a child has special medical needs, effective communication skills are especially important. Here are some tips for starting the school year out right for your child and teachers alike. […]

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Preparing Children for Their IEP or 504 Plan Meeting

How would an IEP or 504 meeting be different if the child that everyone was talking about was actually IN THE ROOM? Our hope is that everyone would make more of an effort to be positive, focus on the gains and strengths and work as a team towards future goals.When your child turns 16 years […]

road

Counting Life’s Unexpected Blessings

Isn’t it interesting to look back over our lives and see where the twists and turns of the unexpected change the course of it?  Life just doesn’t always work out as planned. Yet, I would have never discovered my purpose if it weren’t for my two children being born with cystic fibrosis. It’s amazing what […]