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Successful Transitions: It All Starts with the Toddler Years… (Part 5)

This is Blog # 4 in our Transition series. The last three blogs discussed what transition is and why it matters. This week, we start looking at parenting strategies for raising children with special healthcare needs who are responsible, independent, confident and prepared for the transition/ transfer into the adult medical system. Raising Responsible Children All children must make a shift from parental to personal responsibility. All children must learn to make good choices which are … [Read More...]

Recent Blogs

School and 504 Plans

Give Your Child’s 504 Plan a Checkup

By Lisa C. Greene It’s that time again! It’s only three weeks into summer break and I am already thinking ahead about the next school year. I need to plan ahead because both of my children, now teenagers, have special medical needs. In many ways it was easier when they were in elementary school. There […]

believe

Believing in New Possibilities for the Future

By Lisa C. Greene Today, my daughter said a phrase she uses a lot: “When I’m a doctor someday…” and for the first time, ever, my heart didn’t falter at wondering if she ever would be. Today, for the first time, I have a realistic hope for my children’s futures as doctors, engineers, parents and […]

dreams

Finally Daring to Dream

by Lisa C. Greene What is it like to experience that moment of hope realized? When, after holding your breath for what seems like years, your dreams come true? Today, Vertex announced that they had good results with a medication that may possibly save both of my children’s lives and, at the very least, give […]

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Panic or Anticipation: Are You Enjoying the Summer?

Want to be a happy mama and papa? Want to know the key to having a great summer with your kids? Raise children who are creative. Of course, creativity has to be combined with self-discipline. If you have a creative child who has no self-discipline, then you have raised “the child from hell.” After all, […]

support

Part 1 of 2: Caring, Connecting and Compassion: The Do’s and Don’ts for Giving and Receiving Support During Hard Times

A mom shares her frustration:  “I’m exhausted, overwhelmed, and wiped out. My friends try to help but they just don’t understand. When I talk about my child’s illness, it makes them uncomfortable. Then I feel bad for burdening them. I feel so alone.” What is support? Support can mean different things to different people. Certain aspects of our […]

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Part 2 of 2: Caring, Connecting and Compassion: Do’s and Don’ts for Giving and Receiving Support During Hard Times

In our last blog of this two part series, we looked at what support is and isn’t. Here are the do’s and don’ts for giving and receiving support. Tips for giving support: Before giving support, ask if the other person wants it. “Do you feel like talking about this now?” Of course if they say […]

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How Do I Get Off This Ride?! Riding the Emotional Rollercoaster of Your Child’s Diagnosis

Up and down, around and around, out of control and going wayyy too fast. That’s how some parents describe how they felt when swirling around in the medical maelstrom that follows a child’s diagnosis of cystic fibrosis or another serious medical issue. That’s how I felt when my son was born via caesarian section and […]

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Is Your Teen Giving Up? How to Empower Hope in Teens- Part 1 of 4

I talked with a dad who is concerned about his fifteen-year-old daughter. He is afraid that she is giving up. She has cystic fibrosis (CF) and it’s taking a toll on her mentally and emotionally. She’s been hospitalized a lot and is not doing well at school. He feels like she’s just waiting to die […]

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Is Your Teen Giving Up? How to Empower Hope in Teens- Part 2 of 4

In part 1 of 4, we talked about getting your teen evaluted for depression and being purposeful about finding joy, meaning and connection. This week, we add two more tips for empowering your teen to be hopeful: ● Does your teen have a vision for his or her life? Sometimes when kids have a serious […]

teen finding things they like

Is Your Teen Giving Up? How to Empower Hope in Teens- Part 3 of 4

In this third of a four part series on helping teens with chronic illness stay positive and empowered, we look at three practical strategies: ● Help your teenager begin to make specific plans for the future including career planning. This goes along with helping your teen have a vision for his or her life. When teens […]