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Child doing yoga downward dog

Stretching the Mind and Body: The benefits of yoga for children with special needs

When my daughter Hannah was diagnosed with hemiparesis, which is a mild case of cerebral palsy, I wondered: What can I do to help her? How active should she be? And how can I not be overprotective of Hannah, especially when she goes off to school? The answer seemed to be involving my daughter in as many activities as I could. As a result, Hannah was signed up for swimming, gym and music classes all by her first birthday. My daughter also had eight hours of physical and occupational therapy … [Read More...]

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Summer Camp: A Practice Run for the Real World

Summer camp: starry nights, fun in the sun, adventures, friendships. Summer camp holds so many opportunities for all kids to enjoy and grow. It also provides an opportunity for parents to grow, too. This is especially true when a child has special medical needs. My teenager daughter is in Hawaii right now for spring break […]

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It’s Not Just a Little Cough…. Learning Life Lessons in New Ways

I rarely get sick. Yet I spend a lot of time each month in doctor’s offices and hospitals. I don’t work there, either. Maybe I should! I have two teenagers with cystic fibrosis (CF) and our lives are a constant stream of doctor’s appointments, hospital visits, lab tests, insurance company calls, and hours each month […]

bumps ahead

Avoiding the Bumps in the Road: Essential Tools and Tips for Parenting Children with Health Issues

Parenting isn’t for the faint-hearted! Raising kids throughout their developmental stages is tricky enough; parents of kids with health issues have to face additional challenges along the way. When we know where the bumps and potholes are, it becomes a lot easier to avoid them! So let’s take a look at some of the challenges […]

Unexpected Blessings

The Unexpected Road to Unexpected Blessings

There is no way to prepare yourself for hearing the words: “I am sorry but your child has cystic fibrosis.” In our case, we had never heard of CF; no family history, no warning, no reason to suspect anything was wrong. Until we had an ultrasound two weeks before my due date and our ob-gyn […]

School and 504 Plans

Give Your Child’s 504 Plan a Checkup

By Lisa C. Greene It’s that time again! It’s only three weeks into summer break and I am already thinking ahead about the next school year. I need to plan ahead because both of my children, now teenagers, have special medical needs. In many ways it was easier when they were in elementary school. There […]

believe

Believing in New Possibilities for the Future

By Lisa C. Greene Today, my daughter said a phrase she uses a lot: “When I’m a doctor someday…” and for the first time, ever, my heart didn’t falter at wondering if she ever would be. Today, for the first time, I have a realistic hope for my children’s futures as doctors, engineers, parents and […]

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Finally Daring to Dream

by Lisa C. Greene What is it like to experience that moment of hope realized? When, after holding your breath for what seems like years, your dreams come true? Today, Vertex announced that they had good results with a medication that may possibly save both of my children’s lives and, at the very least, give […]

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Panic or Anticipation: Are You Enjoying the Summer?

Want to be a happy mama and papa? Want to know the key to having a great summer with your kids? Raise children who are creative. Of course, creativity has to be combined with self-discipline. If you have a creative child who has no self-discipline, then you have raised “the child from hell.” After all, […]

support

Part 1 of 2: Caring, Connecting and Compassion: The Do’s and Don’ts for Giving and Receiving Support During Hard Times

A mom shares her frustration:  “I’m exhausted, overwhelmed, and wiped out. My friends try to help but they just don’t understand. When I talk about my child’s illness, it makes them uncomfortable. Then I feel bad for burdening them. I feel so alone.” What is support? Support can mean different things to different people. Certain aspects of our […]

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Part 2 of 2: Caring, Connecting and Compassion: Do’s and Don’ts for Giving and Receiving Support During Hard Times

In our last blog of this two part series, we looked at what support is and isn’t. Here are the do’s and don’ts for giving and receiving support. Tips for giving support: Before giving support, ask if the other person wants it. “Do you feel like talking about this now?” Of course if they say […]